Posts tagged ‘end of life issues’

Dream and Wish Fulfillment Resources for Cancer Patients

The following resources fulfill “dreams’ or wishes” of adult cancer patients:

  1. Adult Wish Foundation
  2. The Dream Foundation
  3. First Descents is an adventure/river rafter program in Colorado for people with cancer
  4. The Jack & Jill Late Stage Cancer Foundation is a national resource providing WOW! experiences for children and families who have a Mom or Dad with late stage, limited life expectancy cancer.”

Jack & Jill Foundation eligibility requirements for all referral candidates:

  1. Late stage limited life expectancy cancer
  2. At least one child age between the ages of three and eighteen. Only one child must meet the age requirement
  3. A life expectancy over two months
  4. Referred by an approved referral agency or treating oncologist.
  5. Referrals must NOT have previously participated in an adult dream, wish or any other similar program.
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April 19, 2011 at 6:08 pm 1 comment

Decision Making Resources for Transition from Treatment to Hospice

For cancer patients looking for a resource to help with the decision making process to either continue treatment or go on hospice, please see the following list of resource recommendations.

  1. Prepare a list of questions and meet with your physician. If your physician agrees that it is appropriate to consider hospice, make an appointment to meet with a hospice agency. If possible have family present at both meetings. For a list of referrals to hospice agencies contact the social worker at Ronnie Lippin Cancer Information and Resource Line.
  2. Use the booklet, Hard Choices for Loving People by Hank Dunn which helps with discussing this type of decision. This is a decision making tool that is not cancer specific and has been helpful for many patients.
  3. Read the article called, Do It Your Way by Kathy Gurland in “A Women’s Health” magazine. It focuses on the decision making process and breaks it down from a self empowering standpoint. Although it is not specific to the decisions for stopping cancer treatment or starting hospice care, it could be helpful as a general framework for cancer patients because it includes the comprehensive steps to be considered when making any serious decision.

March 7, 2011 at 11:42 pm Leave a comment

Leaving a Legacy, A Resource for End of Life

Leaving a legacy for family and friends is one way for a cancer patient with terminal cancer to leave their memory. Creating a legacy about one’s life that reflects accomplishments, cherished memories, and dreams is a valuable gift to family and friends. It can also help ease personal sorrow associated with leaving them behind.

The American Society of Clinical Oncology (ASCO) has a great resource with information for creating a legacy including video diaries, scrapbooks, writing letters to loved ones and many more ideas. It also includes suggestions on leaving a legacy for a child. For more information on leaving a legacy click here.

Animoto.com allows you to create beautiful videos from still camera photos. A step above the generic PowerPoint slideshow, leaving a photo video is another idea for leaving a legacy for your loved ones.

Imemories allows you to convert all types of media (old home movies, camcorder videos, photos, etc) onto a DVD. You simply mail the media to them, they upload it and you edit online and create your own dvd with all your favorite home videos and pictures.

Here are some more ideas on creating and leaving a legacy:
Collect and organize photos, letters, papers, etc.
Write down or record family stories
Collect and write down your favorite recipes
Record special family celebrations and traditions
Keep a journal
Hold a family reunion or gathering to capture recent photos
If you are a musician make a recording
If you are an artist, create a project that your loved ones can work on with you for you to leave behind
Making a recording so people can listen to your voice
Make a family tree and create a photo pedigree showing your ancestors

For more information about creating a legacy contact the social worker at Ronnie Lippin Cancer Information and Resource Line at 877-752-2120 or online at www.lacancerinfo.org

Phyllis Ruja Tell, MSW
Social Work Manager,
Ronnie Lippin Cancer Information and Resource Line
A telephone/internet outreach patient support program
at Tower Cancer Research Foundation

July 21, 2010 at 11:57 pm Leave a comment


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