Posts tagged ‘stoma care’

Resources for those with throat cancers and laryngectomies

For cancer patients who have had a laryngectomy and are looking for resources to find needed equipment, there are several organizations that can provide assistance.

  1. Support for People with Oral , Head, and Neck Cancer (SPOHNC) produces a newsletter and has supportive care resources available on its website.
    800-377-0928
  2. International Association of Laryngectomees (IAL) has an extremely helpful FAQs section for general inquiries as well as a section for first timers that addresses questions such as various types of speech, the speech process, and stoma care.
    866-425-3678
  3. WebWhisperers is now the largest support group for individual laryngectomee survivors of larynx and other throat cancers. They provide useful resources for common concerns, stoma care, food and nutrition as well as information for caregivers.
  4. The Oley Foundation provides tools for people living at home on IVs and tube feedings with a wide range of resources available on their website.
    866-454-7351 or oleyequipment@aol.com
  5. Patient Resource is another useful site that provides information and resources for patients and their families indexed by cancer type.


These organizations may also be contacted for financial assistance as well.

If you have any questions about dealing with a laryngectomy, would like additional resources or need help utilizes the resources above, please contact me, Phyllis Ruja Tell, MSW at the Ronnie Lippin Cancer Information & Resource Line at 877-752-2120. We also provide resources on our website for those affected cancer at www.lacancerinfo.org

Advertisements

August 18, 2011 at 6:05 pm Leave a comment


Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Join 8 other followers